I was invited to attend the National MS Society’s Public Policy Conference in Washington, D.C. at the beginning of March. We kicked it off on Monday afternoon. There were about 200 people there, many decked out in orange apparel- people living with MS, people whose loved ones have MS, MS medical personal and MS SocietyContinue reading “National MS Society Public Policy Conference 2023”
Tag Archives: MS
Mom Guilt
For the first ten years of my life, I was raised by a single mom who worked full time and went to school full time to earn her Masters. She had to miss most of our school functions that took place during the workday but always took us to get 25 cent hamburgers on aContinue reading “Mom Guilt”
The ADA List
March is MS Awareness month. Where are our cocktails, or gold stickers if you’re under 21? I’m sharing the following insider knowledge on the off chance that you’re new to the MS Club or any other Club that requires Disabled Access. I took my daughter to her first show. It was incredible! We went toContinue reading “The ADA List”
Covid Exhaustion
Back when my world shut down on March 12, 2020 we decided to pull our kids out of school to help keep me safe because my neurologist told me not to leave my house and not to interact with other people because if I caught Covid, he was certain it would be a very hardContinue reading “Covid Exhaustion”
1 Year Later
A year ago today, the Hubs and I decided we wanted to be “overly cautious” in case this Covid thing was more serious than everyone thought. We decided to pull our kids out of school a year ago. The next day schools closed anyway. A week later the Hubs was laid off. We never ranContinue reading “1 Year Later”
MS Awareness Week (March 7-13 2021)
March is MS Awareness month for the diagnosis of Multiple Sclerosis. Multiple Sclerosis is an unpredictable disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Multiple Sclerosis is a chronic condition. There is no cure. 1 million people live with MS in theContinue reading “MS Awareness Week (March 7-13 2021)”
Kesimpta (Originally Posted December 2020)
In July, my neurologist told me to look into a new injectable called Kesimpta. It would be approved in September by the FDA. He was excited, as he said it was very similar to the infusion of Ocrevus but in a shot once a month. I was like, “Ummm, ok sure, but I’m not goingContinue reading “Kesimpta (Originally Posted December 2020)”
Things I Find Helpful {MS Perks/Spoonie Swag Edition}
Hello MSFit’s and Spoonies! Today, I am going to share with you some programs that you might be eligible for because you are disabled. I am uncomfortable with the word “disabled” being attached to my persona because I am so much more than the fact that I have to live with Multiple Sclerosis. I hateContinue reading “Things I Find Helpful {MS Perks/Spoonie Swag Edition}”
Things I Find Helpful {Saving the Green Edition}
Disclaimer: I am not a financial guru. These are all just fun suggestions. Some, you could even find on Pinterest. That should exhibit how NOT A FINANCIAL person I am if I find fun tips on Pinterest. So are you a SPENDER or a SAVER? It has been said that opposites attract and generally speaking,Continue reading “Things I Find Helpful {Saving the Green Edition}”
MRI’s in the time of Covid
I have practically been hiding in my house since March 12. 2020. I get mild anxiety if I have to leave the house, especially if there are a lot of other people out and about that might get close to me like at the beach or a grocery store. Saturday morning, I was sitting inContinue reading “MRI’s in the time of Covid”
MSfit Momma 