I was invited to attend the National MS Society’s Public Policy Conference in Washington, D.C. at the beginning of March. We kicked it off on Monday afternoon. There were about 200 people there, many decked out in orange apparel- people living with MS, people whose loved ones have MS, MS medical personal and MS SocietyContinue reading “National MS Society Public Policy Conference 2023”
Author Archives: msfit momma
Mom Guilt
For the first ten years of my life, I was raised by a single mom who worked full time and went to school full time to earn her Masters. She had to miss most of our school functions that took place during the workday but always took us to get 25 cent hamburgers on aContinue reading “Mom Guilt”
Three Things I Wish I Had Known At The Beginning Of My MS Diagnosis
On July 22, 2012, 10 years ago, exactly 100 days before my 30th birthday, I was sitting in the Emergency Room waiting to find out what was going on with me. Two nights earlier, we had been at the county fair and I was having trouble walking. It had started earlier that day at work.Continue reading “Three Things I Wish I Had Known At The Beginning Of My MS Diagnosis”
Christmas In July
The best thing happened today! I scored a video game that my kid has wanted for awhile with a great deal from an early Amazon Prime Day deal. One of my favorite responses when someone asks me where I got something, is to tell them about the deal I scored on it. I’m not sittingContinue reading “Christmas In July”
With MS, There Is Always A Cost
If you or someone you know lives with MS, you probably don’t need me to point out that Multiple Sclerosis is a very expensive disease to have. According to the National MS Society, medications, particularly DMT’s, also known as Disease Modifying Therapies, which are used to try to slow your disease progression down are billedContinue reading “With MS, There Is Always A Cost”
May 30- World MS Day
World MS Day is celebrated on May 30th every year. (It’s different than MS Awareness week/month in March. I think that is maybe celebrated (is that the right word? Are we really celebrating? haha) in the U.S. Anyway, wear orange. It’s the official color of Multiple Sclerosis. Can I tell you a silly story? IContinue reading “May 30- World MS Day”
MSfit Travel Log- Packing Edition
At almost 40, I traveled all by myself, for the first time ever, in my life. I love to travel! I just usually travel with family or friends. I was invited by the National MS Society to attend their Newly Engage MS Activist Workshop, in person, and in Washington D.C.! (Separate post on that later!)Continue reading “MSfit Travel Log- Packing Edition”
Walk MS is Back in Person Baby!!
WalkMS events are happening all over the US and are returning to in person participation all over the US. Our Walk was about 3 weeks ago now. It seemed like there were less people walking than usual but it was still well attended. Our site raised over $60,000! The National MS Society raises funds throughContinue reading “Walk MS is Back in Person Baby!!”
The ADA List
March is MS Awareness month. Where are our cocktails, or gold stickers if you’re under 21? I’m sharing the following insider knowledge on the off chance that you’re new to the MS Club or any other Club that requires Disabled Access. I took my daughter to her first show. It was incredible! We went toContinue reading “The ADA List”
It’s Fundraising Time! 3 Simple Fundraisers to Try If You’re a Newbie!
If you know me, you know that I love participating in Walk MS every year. It’s a walk outside of our local AAA ball park to raise money for the National MS Society for people living with Multiple Sclerosis. The funding helps patients receive financial help they might need for medicine or maybe, a newContinue reading “It’s Fundraising Time! 3 Simple Fundraisers to Try If You’re a Newbie!”
MSfit Momma 