Category Archives: Uncategorized

National MS Society Public Policy Conference 2023

I was invited to attend the National MS Society’s Public Policy Conference in Washington, D.C. at the beginning of March. We kicked it off on Monday afternoon. There were about 200 people there, many decked out in orange apparel- people living with MS, people whose loved ones have MS, MS medical personal and MS SocietyContinue reading “National MS Society Public Policy Conference 2023”

Mom Guilt

For the first ten years of my life, I was raised by a single mom who worked full time and went to school full time to earn her Masters. She had to miss most of our school functions that took place during the workday but always took us to get 25 cent hamburgers on aContinue reading “Mom Guilt”

Three Things I Wish I Had Known At The Beginning Of My MS Diagnosis

On July 22, 2012, 10 years ago, exactly 100 days before my 30th birthday, I was sitting in the Emergency Room waiting to find out what was going on with me. Two nights earlier, we had been at the county fair and I was having trouble walking. It had started earlier that day at work.Continue reading “Three Things I Wish I Had Known At The Beginning Of My MS Diagnosis”

Christmas In July

The best thing happened today! I scored a video game that my kid has wanted for awhile with a great deal from an early Amazon Prime Day deal. One of my favorite responses when someone asks me where I got something, is to tell them about the deal I scored on it. I’m not sittingContinue reading “Christmas In July”

With MS, There Is Always A Cost

If you or someone you know lives with MS, you probably don’t need me to point out that Multiple Sclerosis is a very expensive disease to have. According to the National MS Society, medications, particularly DMT’s, also known as Disease Modifying Therapies, which are used to try to slow your disease progression down are billedContinue reading “With MS, There Is Always A Cost”

Walk MS is Back in Person Baby!!

WalkMS events are happening all over the US and are returning to in person participation all over the US. Our Walk was about 3 weeks ago now. It seemed like there were less people walking than usual but it was still well attended. Our site raised over $60,000! The National MS Society raises funds throughContinue reading “Walk MS is Back in Person Baby!!”

It’s Fundraising Time! 3 Simple Fundraisers to Try If You’re a Newbie!

If you know me, you know that I love participating in Walk MS every year. It’s a walk outside of our local AAA ball park to raise money for the National MS Society for people living with Multiple Sclerosis. The funding helps patients receive financial help they might need for medicine or maybe, a newContinue reading “It’s Fundraising Time! 3 Simple Fundraisers to Try If You’re a Newbie!”

The Girl at the Rock Show

Its always nerve-wracking to go to a new venue/restaurant/hotel etc. It can be hard to tell how they accommodate someone with walking aids. Yes, most businesses are required to be ADA accessible but it doesn’t mean that they are like that in person. We headed to check in where they were checking IDs and Proof of Vaccination cards. As we approached, it was clear there was a set of beautiful stairs looming in front of me.

Decision Time: COVID-19 Booster (Additional) Shot & MS

I just emailed my doctor about getting a booster shot since it just was authorized by the FDA last week for people with compromised immune systems. I live with MS and am immunocompromised because I take Kesimpta, a once a month shot that depletes the B cells in my immune system. B cells are whatContinue reading “Decision Time: COVID-19 Booster (Additional) Shot & MS”