I was invited to attend the National MS Society’s Public Policy Conference in Washington, D.C. at the beginning of March. We kicked it off on Monday afternoon. There were about 200 people there, many decked out in orange apparel- people living with MS, people whose loved ones have MS, MS medical personal and MS SocietyContinue reading “National MS Society Public Policy Conference 2023”
Tag Archives: Spoonie
Mom Guilt
For the first ten years of my life, I was raised by a single mom who worked full time and went to school full time to earn her Masters. She had to miss most of our school functions that took place during the workday but always took us to get 25 cent hamburgers on aContinue reading “Mom Guilt”
Three Things I Wish I Had Known At The Beginning Of My MS Diagnosis
On July 22, 2012, 10 years ago, exactly 100 days before my 30th birthday, I was sitting in the Emergency Room waiting to find out what was going on with me. Two nights earlier, we had been at the county fair and I was having trouble walking. It had started earlier that day at work.Continue reading “Three Things I Wish I Had Known At The Beginning Of My MS Diagnosis”
Christmas In July
The best thing happened today! I scored a video game that my kid has wanted for awhile with a great deal from an early Amazon Prime Day deal. One of my favorite responses when someone asks me where I got something, is to tell them about the deal I scored on it. I’m not sittingContinue reading “Christmas In July”
May 30- World MS Day
World MS Day is celebrated on May 30th every year. (It’s different than MS Awareness week/month in March. I think that is maybe celebrated (is that the right word? Are we really celebrating? haha) in the U.S. Anyway, wear orange. It’s the official color of Multiple Sclerosis. Can I tell you a silly story? IContinue reading “May 30- World MS Day”
MSfit Travel Log- Packing Edition
At almost 40, I traveled all by myself, for the first time ever, in my life. I love to travel! I just usually travel with family or friends. I was invited by the National MS Society to attend their Newly Engage MS Activist Workshop, in person, and in Washington D.C.! (Separate post on that later!)Continue reading “MSfit Travel Log- Packing Edition”
The ADA List
March is MS Awareness month. Where are our cocktails, or gold stickers if you’re under 21? I’m sharing the following insider knowledge on the off chance that you’re new to the MS Club or any other Club that requires Disabled Access. I took my daughter to her first show. It was incredible! We went toContinue reading “The ADA List”
If Its (Gluten) Free, Its For Me
Hey MSfit’s, Spoonies and Party People? How ya been? My life has been jampacked lately. It was just Halloween and now Christmas is in 3 weeks?! Does anybody else feel like 2021 just flew by, considering that we basically lost all of 2020, and now we’re just supposed to jump in to 2022 and conquerContinue reading “If Its (Gluten) Free, Its For Me”
The Girl at the Rock Show
Its always nerve-wracking to go to a new venue/restaurant/hotel etc. It can be hard to tell how they accommodate someone with walking aids. Yes, most businesses are required to be ADA accessible but it doesn’t mean that they are like that in person. We headed to check in where they were checking IDs and Proof of Vaccination cards. As we approached, it was clear there was a set of beautiful stairs looming in front of me.
It’s Been Non-Stop Since January
I feel like I have been going nonstop since January. Girl Scout cookies started. Then it went online only due to Covid protocols. Then they added a month longer to sell. Cookies will close this weekend; which will be a headache and a relief all at once. I start fundraising for Walk MS in JanuaryContinue reading “It’s Been Non-Stop Since January”
MSfit Momma 