I was invited to attend the National MS Society’s Public Policy Conference in Washington, D.C. at the beginning of March. We kicked it off on Monday afternoon. There were about 200 people there, many decked out in orange apparel- people living with MS, people whose loved ones have MS, MS medical personal and MS SocietyContinue reading “National MS Society Public Policy Conference 2023”
Tag Archives: Chronic Illness
Mom Guilt
For the first ten years of my life, I was raised by a single mom who worked full time and went to school full time to earn her Masters. She had to miss most of our school functions that took place during the workday but always took us to get 25 cent hamburgers on aContinue reading “Mom Guilt”
Three Things I Wish I Had Known At The Beginning Of My MS Diagnosis
On July 22, 2012, 10 years ago, exactly 100 days before my 30th birthday, I was sitting in the Emergency Room waiting to find out what was going on with me. Two nights earlier, we had been at the county fair and I was having trouble walking. It had started earlier that day at work.Continue reading “Three Things I Wish I Had Known At The Beginning Of My MS Diagnosis”
Christmas In July
The best thing happened today! I scored a video game that my kid has wanted for awhile with a great deal from an early Amazon Prime Day deal. One of my favorite responses when someone asks me where I got something, is to tell them about the deal I scored on it. I’m not sittingContinue reading “Christmas In July”
With MS, There Is Always A Cost
If you or someone you know lives with MS, you probably don’t need me to point out that Multiple Sclerosis is a very expensive disease to have. According to the National MS Society, medications, particularly DMT’s, also known as Disease Modifying Therapies, which are used to try to slow your disease progression down are billedContinue reading “With MS, There Is Always A Cost”
May 30- World MS Day
World MS Day is celebrated on May 30th every year. (It’s different than MS Awareness week/month in March. I think that is maybe celebrated (is that the right word? Are we really celebrating? haha) in the U.S. Anyway, wear orange. It’s the official color of Multiple Sclerosis. Can I tell you a silly story? IContinue reading “May 30- World MS Day”
The Girl at the Rock Show
Its always nerve-wracking to go to a new venue/restaurant/hotel etc. It can be hard to tell how they accommodate someone with walking aids. Yes, most businesses are required to be ADA accessible but it doesn’t mean that they are like that in person. We headed to check in where they were checking IDs and Proof of Vaccination cards. As we approached, it was clear there was a set of beautiful stairs looming in front of me.
It’s Been Non-Stop Since January
I feel like I have been going nonstop since January. Girl Scout cookies started. Then it went online only due to Covid protocols. Then they added a month longer to sell. Cookies will close this weekend; which will be a headache and a relief all at once. I start fundraising for Walk MS in JanuaryContinue reading “It’s Been Non-Stop Since January”
Things I Find Helpful {Saving the Green Edition}
Disclaimer: I am not a financial guru. These are all just fun suggestions. Some, you could even find on Pinterest. That should exhibit how NOT A FINANCIAL person I am if I find fun tips on Pinterest. So are you a SPENDER or a SAVER? It has been said that opposites attract and generally speaking,Continue reading “Things I Find Helpful {Saving the Green Edition}”
MRI’s in the time of Covid
I have practically been hiding in my house since March 12. 2020. I get mild anxiety if I have to leave the house, especially if there are a lot of other people out and about that might get close to me like at the beach or a grocery store. Saturday morning, I was sitting inContinue reading “MRI’s in the time of Covid”
MSfit Momma 