On July 22, 2012, 10 years ago, exactly 100 days before my 30th birthday, I was sitting in the Emergency Room waiting to find out what was going on with me. Two nights earlier, we had been at the county fair and I was having trouble walking. It had started earlier that day at work.Continue reading “Three Things I Wish I Had Known At The Beginning Of My MS Diagnosis”
Tag Archives: Kesimpta
May 30- World MS Day
World MS Day is celebrated on May 30th every year. (It’s different than MS Awareness week/month in March. I think that is maybe celebrated (is that the right word? Are we really celebrating? haha) in the U.S. Anyway, wear orange. It’s the official color of Multiple Sclerosis. Can I tell you a silly story? IContinue reading “May 30- World MS Day”
MSfit Travel Log- Packing Edition
At almost 40, I traveled all by myself, for the first time ever, in my life. I love to travel! I just usually travel with family or friends. I was invited by the National MS Society to attend their Newly Engage MS Activist Workshop, in person, and in Washington D.C.! (Separate post on that later!)Continue reading “MSfit Travel Log- Packing Edition”
Walk MS is Back in Person Baby!!
WalkMS events are happening all over the US and are returning to in person participation all over the US. Our Walk was about 3 weeks ago now. It seemed like there were less people walking than usual but it was still well attended. Our site raised over $60,000! The National MS Society raises funds throughContinue reading “Walk MS is Back in Person Baby!!”
The Girl at the Rock Show
Its always nerve-wracking to go to a new venue/restaurant/hotel etc. It can be hard to tell how they accommodate someone with walking aids. Yes, most businesses are required to be ADA accessible but it doesn’t mean that they are like that in person. We headed to check in where they were checking IDs and Proof of Vaccination cards. As we approached, it was clear there was a set of beautiful stairs looming in front of me.
It’s Been Non-Stop Since January
I feel like I have been going nonstop since January. Girl Scout cookies started. Then it went online only due to Covid protocols. Then they added a month longer to sell. Cookies will close this weekend; which will be a headache and a relief all at once. I start fundraising for Walk MS in JanuaryContinue reading “It’s Been Non-Stop Since January”
1 Year Later
A year ago today, the Hubs and I decided we wanted to be “overly cautious” in case this Covid thing was more serious than everyone thought. We decided to pull our kids out of school a year ago. The next day schools closed anyway. A week later the Hubs was laid off. We never ranContinue reading “1 Year Later”
MS Awareness Week (March 7-13 2021)
March is MS Awareness month for the diagnosis of Multiple Sclerosis. Multiple Sclerosis is an unpredictable disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Multiple Sclerosis is a chronic condition. There is no cure. 1 million people live with MS in theContinue reading “MS Awareness Week (March 7-13 2021)”
Kesimpta (Originally Posted December 2020)
In July, my neurologist told me to look into a new injectable called Kesimpta. It would be approved in September by the FDA. He was excited, as he said it was very similar to the infusion of Ocrevus but in a shot once a month. I was like, “Ummm, ok sure, but I’m not goingContinue reading “Kesimpta (Originally Posted December 2020)”
Things I Find Helpful {MS Perks/Spoonie Swag Edition}
Hello MSFit’s and Spoonies! Today, I am going to share with you some programs that you might be eligible for because you are disabled. I am uncomfortable with the word “disabled” being attached to my persona because I am so much more than the fact that I have to live with Multiple Sclerosis. I hateContinue reading “Things I Find Helpful {MS Perks/Spoonie Swag Edition}”
MSfit Momma 