My name is Sarah. I am a MSFit.
What exactly is a “MSFit,” you ask? It’s a word I made up after I was diagnosed with Multiple Sclerosis. It is a play on the word “MISFIT.” MS doesn’t always play nice, so I try to remember to laugh about it (although sometimes I do ugly cry.)
I live in Southern California with my Hubs and two tweenager kids- A daughter and a son. We also have a dog named Oreo who thinks I only belong to her and no one else.
I was diagnosed with Multiple Sclerosis on July 22, 2012 exactly 100 days before my 30th birthday. I celebrate it every year like an anniversary. It’s a day that my life was forever changed. I asked the doctor in the ER if I would die from it and when he said no, I decided to start making everyday count thereafter. It’s not always a party there are days I get frustrated.
Yes, I HAVE MS (blah blah, and MS DOESN’T HAVE ME, blah blah) but there is so much more to ME than my MS.
Like for instance, I am SUPER extroverted and routinely give too much information to random cashiers when they innocently ask, “How’s your day?” as they’re ringing up my purchases. I love to bake but hate to cook. I don’t watch a ton of TV but am obsessed with ghost hunting and true crime shows.
I have become an advocate for healthcare access specifically focusing on Multiple Sclerosis but all of healthcare is broken in America and anyone who requires it should want it improved. I am very involved with the National MS Society as a patient advocate. I also participate in Walk MS every year. (Team: Talkie Walkie MSfits!) Orange is the official color of Multiple Sclerosis and I really think we need to start a petition to change it to sparkles!