I originally posted this to my Facebook page two years ago on World MS Day Let’s talk about how I am a Liar on #worldmsday As we all know, I have MS (Multiple Sclerosis) a debilitating neurological condition. I’ve been diagnosed 7 years now in July. I am sunny, optimistic and always cracking jokes aboutContinue reading “I am a Liar”
Category Archives: Uncategorized
It’s Been Non-Stop Since January
I feel like I have been going nonstop since January. Girl Scout cookies started. Then it went online only due to Covid protocols. Then they added a month longer to sell. Cookies will close this weekend; which will be a headache and a relief all at once. I start fundraising for Walk MS in JanuaryContinue reading “It’s Been Non-Stop Since January”
1 Year Later
A year ago today, the Hubs and I decided we wanted to be “overly cautious” in case this Covid thing was more serious than everyone thought. We decided to pull our kids out of school a year ago. The next day schools closed anyway. A week later the Hubs was laid off. We never ranContinue reading “1 Year Later”
MS Awareness Week (March 7-13 2021)
March is MS Awareness month for the diagnosis of Multiple Sclerosis. Multiple Sclerosis is an unpredictable disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Multiple Sclerosis is a chronic condition. There is no cure. 1 million people live with MS in theContinue reading “MS Awareness Week (March 7-13 2021)”
Kesimpta (Originally Posted December 2020)
In July, my neurologist told me to look into a new injectable called Kesimpta. It would be approved in September by the FDA. He was excited, as he said it was very similar to the infusion of Ocrevus but in a shot once a month. I was like, “Ummm, ok sure, but I’m not goingContinue reading “Kesimpta (Originally Posted December 2020)”
It’s been too long (This post was lost in cyberspace. I originally posted it in November)
I don’t even know where to start this post. I haven’t been in the mindset to blog for a few different reasons. Pandemic Problems. People I love dying. School at home (Not to be confused with Home Schooling. I leave my kids learning up to the professionals.) I try to use this blog to shareContinue reading “It’s been too long (This post was lost in cyberspace. I originally posted it in November)”
Things I Find Helpful {MS Perks/Spoonie Swag Edition}
Hello MSFit’s and Spoonies! Today, I am going to share with you some programs that you might be eligible for because you are disabled. I am uncomfortable with the word “disabled” being attached to my persona because I am so much more than the fact that I have to live with Multiple Sclerosis. I hateContinue reading “Things I Find Helpful {MS Perks/Spoonie Swag Edition}”
Things I Find Helpful {Saving the Green Edition}
Disclaimer: I am not a financial guru. These are all just fun suggestions. Some, you could even find on Pinterest. That should exhibit how NOT A FINANCIAL person I am if I find fun tips on Pinterest. So are you a SPENDER or a SAVER? It has been said that opposites attract and generally speaking,Continue reading “Things I Find Helpful {Saving the Green Edition}”
MRI’s in the time of Covid
I have practically been hiding in my house since March 12. 2020. I get mild anxiety if I have to leave the house, especially if there are a lot of other people out and about that might get close to me like at the beach or a grocery store. Saturday morning, I was sitting inContinue reading “MRI’s in the time of Covid”
Things I Find Helpful {Kitchen Edition}
Let me just say before we dive into this: I DO NOT LIKE TO COOK. Bake- yes. COOK- NO! That being said, I love to buy kitchen gadgets and items that make my life easier for the times I DO cook. I love one pot meals or freezer dump meals that you can throw intoContinue reading “Things I Find Helpful {Kitchen Edition}”