I don’t even know where to start this post. I haven’t been in the mindset to blog for a few different reasons.
- Pandemic Problems.
- People I love dying.
- School at home (Not to be confused with Home Schooling. I leave my kids learning up to the professionals.)
I try to use this blog to share about my life living with MS. BUT fair warning, I think this post will be more of a Mind Dump because it’s been so long since I wrote anything at all.
Hmm, so lets start with MS related news:
I started a new DMD on November 1st. It’s called Kesimpta. It was FDA approved September 1, 2020. It’s an injection once a month. My neurologist brought it up, probably back in June. He said it’s very similar to Ocrevus which has been a great medicine for me. (I don’t mind the infusion twice a year. I usually just sleep through it.) My neurologist was very worried about my immune system being out of order for 6 months at a time during a pandemic. So we discussed it and I thought about it.
As time progressed and we got closer to my October infusion date with no Covid end in sight, I called his office and we set me up on Kesimpta. (I’ll do a full blog post on Kesimpta soon.) With me switching to Kesimpta, he also gave me the green light to leave my house. That was awesome for my psyche!! The first day I went to Target, I only spent $24 (after 7 months indoors!!)
I think I appreciate the green light more so then actually wanting to go be out around people. I get very stressed out if I am in an aisle with too many people or if lines are long and people aren’t staying 6 feet apart. I still feel that I can only stay as safe as other people take it. Since Covid rates are skyrocketing again in California, we’ve gone back to the Hubs doing 99% of the out of house errands.
What else? Oh the Dodgers won the World Series! That was so exciting to see with our kids. (Same with the presidential election!)
Everything else I start typing either needs it’s own post or feels to personal to share right now.