Back when my world shut down on March 12, 2020 we decided to pull our kids out of school to help keep me safe because my neurologist told me not to leave my house and not to interact with other people because if I caught Covid, he was certain it would be a very hardContinue reading “Covid Exhaustion”
Author Archives: msfit momma
If Its (Gluten) Free, Its For Me
Hey MSfit’s, Spoonies and Party People? How ya been? My life has been jampacked lately. It was just Halloween and now Christmas is in 3 weeks?! Does anybody else feel like 2021 just flew by, considering that we basically lost all of 2020, and now we’re just supposed to jump in to 2022 and conquerContinue reading “If Its (Gluten) Free, Its For Me”
The Girl at the Rock Show
Its always nerve-wracking to go to a new venue/restaurant/hotel etc. It can be hard to tell how they accommodate someone with walking aids. Yes, most businesses are required to be ADA accessible but it doesn’t mean that they are like that in person. We headed to check in where they were checking IDs and Proof of Vaccination cards. As we approached, it was clear there was a set of beautiful stairs looming in front of me.
Decision Time: COVID-19 Booster (Additional) Shot & MS
I just emailed my doctor about getting a booster shot since it just was authorized by the FDA last week for people with compromised immune systems. I live with MS and am immunocompromised because I take Kesimpta, a once a month shot that depletes the B cells in my immune system. B cells are whatContinue reading “Decision Time: COVID-19 Booster (Additional) Shot & MS”
I am a Liar
I originally posted this to my Facebook page two years ago on World MS Day Let’s talk about how I am a Liar on #worldmsday As we all know, I have MS (Multiple Sclerosis) a debilitating neurological condition. I’ve been diagnosed 7 years now in July. I am sunny, optimistic and always cracking jokes aboutContinue reading “I am a Liar”
It’s Been Non-Stop Since January
I feel like I have been going nonstop since January. Girl Scout cookies started. Then it went online only due to Covid protocols. Then they added a month longer to sell. Cookies will close this weekend; which will be a headache and a relief all at once. I start fundraising for Walk MS in JanuaryContinue reading “It’s Been Non-Stop Since January”
1 Year Later
A year ago today, the Hubs and I decided we wanted to be “overly cautious” in case this Covid thing was more serious than everyone thought. We decided to pull our kids out of school a year ago. The next day schools closed anyway. A week later the Hubs was laid off. We never ranContinue reading “1 Year Later”
MS Awareness Week (March 7-13 2021)
March is MS Awareness month for the diagnosis of Multiple Sclerosis. Multiple Sclerosis is an unpredictable disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Multiple Sclerosis is a chronic condition. There is no cure. 1 million people live with MS in theContinue reading “MS Awareness Week (March 7-13 2021)”
Kesimpta (Originally Posted December 2020)
In July, my neurologist told me to look into a new injectable called Kesimpta. It would be approved in September by the FDA. He was excited, as he said it was very similar to the infusion of Ocrevus but in a shot once a month. I was like, “Ummm, ok sure, but I’m not goingContinue reading “Kesimpta (Originally Posted December 2020)”
It’s been too long (This post was lost in cyberspace. I originally posted it in November)
I don’t even know where to start this post. I haven’t been in the mindset to blog for a few different reasons. Pandemic Problems. People I love dying. School at home (Not to be confused with Home Schooling. I leave my kids learning up to the professionals.) I try to use this blog to shareContinue reading “It’s been too long (This post was lost in cyberspace. I originally posted it in November)”